August - 2018

Who Lives Like This

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Anat Baniel and the Unlimited Potential of the Human Brain

Changing the Way the World Looks at Our Children with Monika Jones

Rounding Out the Trio with Ilene Chazan

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Art and Chaos with Mimi Feldman

Art and Chaos with Mimi Feldman

Miriam Feldman is an artist and writer from Los Angeles. She and her husband of 37 years, Craig O'Rourke, have four grown children and seven grandchildren. An unexpected turn in their lives propelled her to begin writing a few years ago. Listen on iTunes Miriam's 32 year old son, Nick, has schizophrenia. He was diagnosed at nineteen years old, and for the past twelve years, their lives have been filled with doctors, firemen, ambulances and policemen in an unending search for

Writing, Identity and DNA with Jeneva Burroughs Stone

Writing, Identity and DNA with Jeneva Burroughs Stone

In today's podcast, we talk to Jeneva Stone, a writer, caregiver and "sub-amateur" photographer. Jeneva and her husband Roger live in Maryland and have two children, an eighteen year old daughter, Edith and a twenty-one year old son, Robert. Robert has the rarest of rare diseases, so rare that he was undiagnosed for 14 years. Robert's dystonia is globalized and progressive; he is, essentially "locked in." Despite being non-verbal, Robert has much to say and uses sophisticated

The Power of Community and Social Media: A discussion with Ellen Seidman

The Power of Community and Social Media: A discussion with Ellen Seidman

Ellen Seidman is a magazine editor, a wife and the mother of fifteen year old Max, thirteen year old Sabrina and two a half year old Ben. She is also a blogger and has been writing "Love That Max" for nearly ten years. Max had a bilateral stroke at birth and has cerebral palsy and significant developmental disabilities as a result. He is "the happiest human being I've ever met," Ellen states and shares his love for all things red and fireman-related. Max was five years old wh

The Mysteries of Undiagnosed Conditions and Genetic Testing with Laura LeBrun Hatcher

The Mysteries of Undiagnosed Conditions and Genetic Testing with Laura LeBrun Hatcher

Laura LeBrun Hatcher is a graphic designer, a small business owner, an adjunct professor and the Director of Communications for Little Lobbyists. She is the mother of a sixteen year old daughter, Olivia, and a twelve year old son, Simon. During a routine ultrasound in the latter part of her pregnancy with Simon, she and her husband Brian learned that the baby had hydrocephaly. When Simon was born they also discovered that he had had a stroke in utero whose effects would casca