It's been a few weeks since Jason and I recorded a conversation with seventeen-year-old Clio Chazan-Gabbard, the daughter of our recent guest Chris Gabbard. During those weeks, both Jason and I have touched on just how moved and almost overwhelmed we were by this beautiful human being. We are so honored as parents of children with disabilities that Clio shared her life and experience with us. We know that you will feel the same and hope that you will share the conversation wi

Jessica Patay is a mother, wife, and advocate for mothers of special needs children. She is also a coffee and book addict, who has no business buying any more books this century. Or shoes. Married to her husband Chris for 22 years, she uses her psychology degree to artfully and carefully lead her lovely brood of 3 teenagers, Luke (18), Ryan (15), and Kate (13). Ryan was diagnosed at birth with Prader Willi Syndrome, a rare genetic disorder marked by hyperphagia, low muscle to

Disclaimer: I know these two young men and love them both. Finally! The inaugural Who Lives Like This!? podcast with siblings! Given the repeated request for a podcast with siblings, we've finally come through and are thrilled to introduce you to two stellar young men. Henry Beglinger is a native Angeleno, the middle child and younger brother to Sophie, my daughter who has a refractory seizure disorder and severe developmental disabilities. Henry has a younger brother as well

Michelle and her husband Aron are parents to two young adults, their daughter Rachel and son Danny. Known as "DJ Danny," Michelle's son has cerebral palsy and speech apraxia, but he is a "sociable, fun-loving guy." He loves all kinds of music but particularly the Macarena. Danny has had a few gigs at special needs parties, and this summer while away at Camp Ramah, he worked as a DJ at the pool! Michelle is also a parent disability advocate, a non-profit innovator and a social

Jason and Elizabeth are thrilled that they've now recorded ten podcasts with ten amazing people and have so much in store for Who Lives Like This?! During today's podcast, the two banter about what's been happening in their lives since they last spoke and launched the podcast which, obviously, is mostly stuff related to caregiving.Elizabeth tries to entertain with her latest tale of woe -- a Monty Python-esque experience getting the insurance company to cover some medication