July 31, 2018


Sandra Joy Stein lives with her husband and son in New York. Her son spent the first two years of his life as a typical baby and toddler, but when he was almost 3 years old, he woke up one morning in a seizure and ended up in a hospital for the next fifteen months. Dia...

July 24, 2018

Josh Fyman lives with his wife Avigael and young son Morgan on Long Island. His seven year old daughter Penny has lived for the past 3 1/2 years at St. Mary's Hospital for Children. Penny was diagnosed with Aicardi Syndrome, a very rare seizure disorder. Although the r...

July 17, 2018

Natalie Weaver is a caregiver, mother and healthcare and patient advocate. Her fight was inspired by her daughter Sophia who wouldn't survive without healthcare. Sophia is nine years old, loves music and cuddling and arts and crafts. She was diagnosed with Rett Syndrom...

July 10, 2018

You might already have heard of Paige Figi -- or at least her daughter Charlotte of the eponymous "Charlotte's Web," a type of therapeutic hemp oil with low THC and high CBD (CBD, or Cannabidiol, is a known anticonvulsant, reducing epileptic symptoms without the psycho...

July 2, 2018

Ted Lyde is a comedian and the father of a special needs son and a "near-genius" daughter. His son Jackson is fifteen years old and his daughter Grace is seventeen. Jackson has muscular ataxia and is non-verbal, but Ted says he's still very loud and celebratory, even a...

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